Trials of Value: How Do Values Get Written into Clinical Experiments?
SpeakersProf Francis Lee, Linköping University
Organised byESRC Genomics Policy and Research Forum
VenueThe University of EdinburghCollege of Humanities and Social ScienceSt John's LandHolyrood RoadEdinburgh EH8 8AQ Tel: 0131 651 4747
What medical knowledge is worth pursuing? This is a crucial question in the field of clinical research, where choices in research design involve decisions about what knowledge is considered valuable and possible to realise. Such choices have consequences for patients, healthcare, and business. But we know little about how these important choices are made in practice. This is unfortunate in light of the recurrent observation that prioritisations in medical research do not always reflect the common good.This presentation will consider how to study the ways in which clinical scientists perform different values when they design their studies. The design phase is especially important as it sets the boundaries for what knowledge is possible to obtain. In this presentation I propose a number of ways we could use to study the design phase in clinical experiments with a focus on the scientific, medical, and economic values at play. I especially emphasize the performance of economic valuations vs medical and scientific values.