1. ESRC Genomics Network (archive)
  2. Gengage
  3. The Human Genre Project

Egenis · People

Dr. Daniele Carrieri

Associate Research Fellow


01392 725135


01392 724676






Byrne House


I graduated in Philosophy (1st class degree) from the University of Padova under the supervision of Prof. Giovanni Boniolo. I continued my studies at the University of Exeter, obtaining a Master’s degree in Sociology and Philosophy of Science (Merit) under the supervision of Prof. Lenny Moss. My PhD research was on . This was supervised by Dr. and Dr at Egenis, and Dr. Peter Turnpenny at Clinical Genetics in the RD & E Heavitree hospital in Exeter and is due for completion shortly.

I was appointed as an Associate Research Fellow in Egenis in 2011 and work as an associate research fellow in Dr Susan Kelly's Healthcare Technologies and Society (HTS) Research Group.


Carrieri, D., Review of Disclosure Dilemmas edited by C. Rehmann-Sutter and H. Muller, Genomics, Society and Policy 2010/11, Vol.6 No.3: 74-77.

Carrieri D., Farrimond, H., Kelly S. and Turnpenny P., 'Fragmented Biosociality: Familial Meanings of Neurofibromatosis Type 1'. Abstract in Journal of Medical Genetics 2010; 47: Supplement 1

Working paper

Carrieri D. and Elliott, A., `Double Vision: Reflections on Cloning, Genes and Science in Fictional Film.'

Academic Activities

Research assistant for Dr Susan E. Kelly academic year 2009/10

HuSS Postgraduate Conference 2009, Exeter University: Executive Assistant


'Neurofibromatosis Type 1 (NF1): Family Experiences and Healthcare Management' PenTag, Institute ofHealth Service Research, University of Exeter, 30 March 2012.

'Neurofibromatosis Type 1 (NF1): Patients, Families and Health Care System', Neuro Foundation AGM, Research and Healthcare Update, Deaf Cultural Centre, Birmingham, 9 July 2011.

'Appearance in NF1', Genetics and Society Day, First Impressions: Issues of Appearance in Genetic Disorders, Institute of Medical Genetics University Hospital of Wales, Cardiff, 19 May 2011.

'NF1: Patients' attitudes towards the syndrome and the structure of the medical Service', Clinical Genetics, RD&E Hospital, Exeter, 2 February 2011

‘NF1 Individuals and Families in the Health Care System’, Manchester Academic Health Science Centre, Central Manchester University Hospitals, Saint Mary's Hospital, 29 November 2010

‘NF1 Illness Identity’, BIOS Visitors Roundtable, London School of Economics, 3 November 2010.

Carrieri D., Farrimond, H., Kelly S. and Turnpenny P., 'Fragmented Biosociality: Familial Meanings of Neurofibromatosis Type 1' (poster presentation), British Human Genetics Conference, University of Warwick, 6 - 8 September 2010.

'Fragmented Biosociality: Familial Meanings of Neurofibromatosis Type 1’, British Sociological Association Medical Sociology Group Conference, Durham University, 1-3 September 2010.

'Familial Meanings of Neurofibromatosis Type 1’, College of Social Sciences and International Studies Annual Postgraduate Conference, University of Exeter 18 -19 May 2010.

'The Role of Genetic Knowledge and Practices in Familial and Professionals’ Constructions of Neurofibromatosis Type 1’, ESRC Genomic Network Conference, City Hall, Cardiff, 7-9 October 2009.

'The role of Genetic Knowledge and Technologies in Constructions of Neurofibromatosis Type 1’ , Egenis, Exeter University, 2 June 2009.

‘Perceptions of and Experiences with Neurofibromatosis Type 1’, RD&E Hospital, Clinical Genetics, Exeter, 18 March 2009.

‘Perceptions of and Experiences with Neurofibromatosis Type 1’, PFGS Colloquium, Lancaster University, 11-12 Dec 2008.

Research Interests

My main interests are in sociology (especially sociology of health and illness), philosophy, psychology and qualitative research methods.