IntroductionA symposium proposed by Egenis researchers has been accepted by the prestigious Brocher Foundation in Geneva.
‘New developments in non-invasive prenatal genetic testing: Ethical, legal and social implications’, proposed by Dr Susan Kelly and Dr Hannah Farrimond, will take place with 30 invited participants at the Foundation in November next year.
The Brocher Foundation is a non-profit making institution which exists to facilitate multidisciplinary study of the ethical, social and legal issues of medical research and new medical technologies.
The symposium will bring together experts from around the world who are currently engaging with non-invasive prenatal genetic diagnosis (NIPD) development to consider how it will, or should, shape future prenatal health policy and regulation. It will address questions such as: Do NIPD technologies raise new questions about the moral and public health justifications for routine antenatal screening and testing? Do these technologies raise particular concerns for vulnerable groups?
Discussions at the symposium will contribute to an edited volume which will include historical and philosophical perspectives on new medical technologies, as well as ethical and sociological perspectives on the science and its impacts.
It is hoped the event will also lead to the creation of an international ‘network of expertise’ about the ethical, legal and social implications of NIPD among scientists, bio-ethicists, social scientists and health policy researchers. Such a network could be called upon to advise governments and other regulators as they develop policies on the clinical implementation of NIPD.