Egenis Seminar with Dr Jane Kaye, 'Genomics and data-sharing in a global world - current issues for practice'
Dr Jane Kaye, HeLEX, Centre for Health, Law and Emerging Technologies at the University of Oxford.
University of Exeter,Egenis,Byrne House,St Germans Road,Exeter, EX4 4PJ
Room no: GF7
Time: 3:00 - 4:30pm
Genomics research is increasingly dependent upon global data and sample sharing and the building of infrastructure to support this. Data-sharing policies have been in place in the USA and in the UK for almost over a decade now which require deposition of data and have lead to new access governance frameworks. The challenge for individual researchers is to simultaneously fulfil the requirements of funding bodies, honour their obligations to study participants, and protect their own interests and careers. The challenge for funders is to ensure that public trust is maintained and that data sharing policies improve the transfer of research results and knowledge. To ensure that this framework is sustainable, good working relations are required between funders, collaborating groups of scientists and the many thousands of recruits that will be needed in the future. The purpose of this talk is to discuss some of the challenges of data sharing, provide an overview of changes in practice that have resulted and to present some of the new initiatives in IT to facilitate data sharing that are unfolding.